International Consultation on Incontinence Questionnaire Inflammatory Bowel Disease (ICIQ-IBD)

Questionnaire for patients who suffer with Inflammatory Bowel Disease looking at the affect it has on their quality of life during remission and flare ups.  Responsiveness is yet to be tested for this module and we would happily invite further testing of this parameter to increase the robustness of this module. 

Number of items: 43

Question items:

  • Nocturia
  • Incontinence at night
  • Urgency
  • Urgency – make it in time
  • Staining/Pad use
  • Control of watery/lose stool
  • Predictable accidents/leakage
  • Control of flatulence
  • Unpleasant smelling flatulence
  • Abdominal pain
  • Time between urge and motion
  • Accidents of your mind
  • Self-conscious away from home
  • Energy levels
  • Embarrassment
  • Concerned about other’s thoughts
  • Toilet mapping
  • Worry about making it to a toilet
  • Emotions
  • Planning
  • Alter plans
  • Stop going out
  • Family life
  • Social life
  • Worry about future
  • Constipation
  • Strain
  • Control of formed/solid stools
  • Control of mucus
  • Flatulence noise
  • Working life
  • Sexual activities
  • Feel less attractive
  • Frequency
  • Medication

Associated publications:
Norton, C., Dibley, L.B., Bassett, P., 2013. Faecal incontinence in inflammatory bowel disease: associations and effect on quality of life. J Crohns Colitis 7, e302-311.

Level of validation according to ICI grades of recommendation:
Not yet graded

Suggested modules to use in conjunction:

Completion time: 
10 – 15 minutes

Languages available: 
English UK


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