Frequently Asked Questions

FAQs:

I work in an Academic Institution do I have to pay for the ICIQ modules if I am using them for Academic purposes?
Modules with the intended use in small research projects or clinical practice are free for use. Please see our licencing page for more details. 

I work for a Pharmaceutical Company do I have to pay for the ICIQ modules?
Modules requested by commercial companies for commercial use are asked to pay a fee per module. The funds are used to support the research and continued development of the ICIQ. Modules are priced at £2000 per module or translation.

Can we select individual items to use rather than the whole questionnaire?
It is not advised to select individual questions from the modules as each of the modules have been validated in their entirety. 

Can we combine questions from different modules?
We advise that each module is used in its entirety in its supplied format, as each of the modules have been validated in their entirety. However multiple modules may be administered together (in their entirety).

What do I do if the language I want is not available?
We are keen to support academic research and continued development of the ICIQ and would be happy for you to collaborate with us to create a translation for that module in a new language. Please refer to validation methodology for full details.

Electronic data capture
E-versions usually require re-validation to ensure their validity in an electronic format. We have recently conducted these studies and are in the process of developing infrastructure for patient completion of e-versions that we intend to supply centrally, in much the same way as the current paper version. In the meantime, we advise that if the questionnaires are supplied electronically the format is kept as similar to the original as possible.

Scoring
The existing domain scores for each module were derived through statistical analysis that identifies the items that relate to each other to assess a common element. Therefore it is scientifically justified to use these to compare the condition of groups of patients over time. The part b for each question (which measures the degree of “bother” of a particular symptom by a particular patient) is not used in the scoring but it can be helpful in determining the patient’s priority for treatment.

Minimally important differences
We do not have any data on a minimally important clinical differences as this is an additional development, and we only undertake the initial validation of our questionnaires. However, further work has been done for some of the modules to explore this, for example: Klovning A, Avery K, Sandvik H, Hunskaar S. Comparison of two questionnaires for assessing the severity of urinary incontinence: The ICIQ-UI SF versus the incontinence severity index. Neurourol Urodyn. 2009 28(5):411-5.