Frequently asked questions


I work in an Academic Institution do I have to pay for the ICIQ if I am using it for Academic purposes?
No, modules with the intended use in research or clinical practice are free for use.

I work for a Pharmaceutical Company do I have to pay for the ICIQ?
Yes, modules requested by commercial companies for commercial use will have to pay per module this will support the research and continued development of the ICIQ. 

Do I pay per request or per module?
ICIQ modules are priced at £2000 per module

Can we select individual items to use rather than the whole questionnaire?
No, each module must be used in its entirety in its current format only, not doing so may affect the validity of the findings. However multiple modules may be used together, each in their entirety. 

Can we combine questions from different modules?
No, each module must be used in its entirety in the current format only, however multiple modules may be used together, each in their entirety.

Electronic data capture
We are happy for the ICIQ to be incorporated into electronic systems providing they are not to be completed by patients and are simply a means of internal data capture. E-versions of validated questionnaires require re-evaluation to ensure their acceptability and that their psychometric properties retain equivalence in an electronic format. We have recently conducted these studies and are in the process of developing infrastructure for patient completion e-versions that we intend to supply centrally, in much the same way as the current paper versions.

Scoring and minimally important differences
Currently the total score of an individual patient has no absolute meaning, so one cannot say for example, that a particular score is either “moderate” or “severe”. However, the existing domain scores were derived through statistical analysis that identifies the items that relate to each other to assess a common element. Therefore it is scientifically justified to use these to compare the condition of groups of patients over time. The part b for each question (which measures the degree of “bother” of a particular symptom by a particular patient) is not used in the scoring but it can be helpful in determining the patient’s priority for treatment.